The BIO-NMD project aims to identify, characterize and validate biomarkers. In doing so, it will make use of animal and human tissue. The use of biomaterial from patients and control subjects as well as the use of animal experiments entails ethical issues of which all partners need to be aware.
The participants of the BIO-NMD project will be guided by an independent Project Ethics Board (PEB). This board will closely collaborate with and draw upon the expertise of the TREAT-NMD Project Ethics Council (PEC).
The PEB and PEC will implement a discussion forum to enable the widest possible debate both within the project and with patients, their families and interested members of the public.
You can view questions that have been put to the Project Ethics Council and their responses or post a new question by following this link.